Asia with its huge population—two-thirds of the world’s
population—has the second largest number of total number of
cases in the world of HIV and India which has an estimated 4 million
HIV, the second largest number of any country after South Africa.
So you can see that Asia is the region where in fact the epidemic
can take on very huge proportions in terms of numbers, not necessarily
in terms of prevalence levels. But you know very low prevalence
level in Asia can be much higher numbers than what you see today
in sub-Saharan Africa. And as we know the epidemic takes a very
heavy toll on children in Africa. We know that half of all new infections
are occurring amongst young people. There were estimates not too
long ago of 13 million orphans but that has been surpassed, as you
will hear from Peter Mcdermott today. And children who are orphaned
by parents who have contracted the infection and the full-blown
syndrome are much more likely to suffer all kinds of risk and are
so vulnerable: they are exploited both sexually and otherwise and
they are very likely to get infection, especially in high prevalence
countries.
Five very distinguished speakers will discuss this issue from their
own perspective after first giving you the estimates. Our first
speaker is going to be Peter Mcdermott. He is chief of the global
HIV/AIDS programme at UNICEF. He has just come in from London and
has come straight here from the airport, and is still trying to
get his notes together.
Peter McDermott: Good evening everyone…Let
me pay my thanks to the Asia Society for not just inviting us but
really putting on this evening. I think it’s both very timely
and increasingly a very important subject. I’d also, if I
may, just take a second to really pay tribute to Nafis—her
leadership both as when she was the executive director of UNFPA
and recently, the last few years, as the Envoy for Asia, has been
really wonderful and they are not easy days for the UN, and they’re
not easy days for issues to due with sexuality, in particular in
many countries where, in particular in south east Asia, where cultural
norms are not always comfortable in dealing with a subject like
this. So Nafis, if I may, on behalf of UNICEF and all of us working
in this field, thank you.
The situation globally for HIV/AIDS is disastrous and people get
tired of me saying that the worst is yet to come. I think predominantly
we’ve always been focused on sub-Saharan Africa and truly
sub-Saharan Africa is currently bearing the brunt; whether it’s
in HIV/AIDS infections, the number of deaths, whether it’s
the number of children that are dying. Sub-Saharan Africa represents
about seventy percent of those grim and increasingly dire statistics.
But I think that we really have to start by saying one thing: that
HIV/AIDS is increasingly an urgent global problem. I’ve just
come from London this afternoon and we were talking this morning
with British government—HIV/AIDS is increasing. Last week
we were in Dublin, with the Irish EU presidency and we were talking
about the 5000 percent increase in HIV/AIDS in some of the session
countries to enlarge Europe—Estonia, Russia, Ukraine, and
countries where we have a severe problem. We were talking very hypothetically
about a second wave of HIV/AIDS. I think we need to talk about,
now, the third wave. I think the second wave is with us.
And I think that we need to focus this evening on what then is
the potential impact really, now, and potential impact, in the future,
on children. In some ways we have not focused empirically on the
evidence in Asia, the numbers are still for the most part quite
small, and some of the data especially for some of the bigger countries
has been challenging to get, especially in China and India. But
whether its China, India, Thailand, Cambodia, Vietnam, Papua New
Guinea, I think it’s quite clear that the impacts are larger
and getting larger and as I keep saying, and the worst is yet to
come.
But I think we need to be quite realistic. We need to understand
that, as in sub-Saharan Africa, there is not one HIV/AIDS pandemic.
There are really some quite key differential, biological, social,
economic determinants which we can use as predictors for where we
will have a major pandemic and, if so, how. But on the other hand,
I would like to urge some caution: in 1992, in southern Africa,
in fact, in South Africa, just before the transition from Apartheid,
to the new rainbow coalition, South Africa had a rate of about two
or three percent. It wasn’t really clear because the analysis
was unavailable in particular in some of the black population areas.
But who would of thought that between 1992 and 2002, a decade, South
Africa would become the area of the world with four million people
infected and some of the highest increased death rates due to HIV/AIDS
and a reduction in life expectancy and an increase in child and
infant mortality so dramatically? And yet other countries are now,
at least in terms of percentage terms, surpassing that: Swaziland,
Botswana, and etcetera. [These countries now] have higher national
prevalence rates.
But I am not suggesting that we will necessarily see such vast
growing and aggressive HIV/AIDS pandemic in South East Asia. But
already globally, an HIV/AIDS pandemic in Asia will impact in a
much more significant way because of the difference, between the
percentage increase of one percent in India or china, will dwarf
anything that we have seen to date in sub-Saharan Africa. We already
have between 2.8 and 3.2 million children who are being born positive
every year. The current projections and the new projections, that
will be out shortly from Children on the Brink, will indicate that
we have 14 million orphans due to HIV/AIDS currently and that, conservatively,
25 million by 2010. 11 million of those are currently in sub-Saharan
Africa.
But there are a couple of other dimensions I think we need to bring
out: one is that the pandemic, in Asia as well as most other parts
of the world, is young people. Of the 6,000 people currently getting
infected every day, half are young people. Increasingly there is
a female face, and this is particularly evident in sub-Saharan Africa
but also in India.
Just to illustrate the point about how things can change, in 1986,
almost no black on the map whatsoever, but by 2003 already we’re
beginning to see that breakthrough point of one percent in some
parts of the region.
I think that we need to emphasize the potential catastrophe but
we need to be realistic that we don’t have it yet. And as
I said there are some underlying key determinants that will act
as predictors, as we move from that threshold of the one percent
and above, as to what will happen in certain societies. The big
question I think that we need to pose to ourselves tonight and in
the discussion around the children and HIV/AIDS in Asia, is: are
we beginning to see that change in terms of numbers and in terms
of the types of subpopulations that are affected? Historically in
China, India, Thailand, Vietnam, Cambodia; it’s been high-risk
populations, young sex workers. In Myamnar, for instance, something
like 60 percent of the sex workers are young girls, forty percent
of whom are HIV positive. In other areas, through blood contamination
or injection drug use, we are beginning to see, and this is the
crucial period, increases in HIV/AIDS in antenatal presenting pregnant
women. So it is no longer in some cases just high-risk groups.
In terms of projections for children, I think the numbers are increasing
in absolute terms, but the percentage for the most part remain quite
small with one or two notable exceptions. Thailand because of the
maturity of the pandemic and also Cambodia, although both have shown
quite significant decreases over the last few years.
So the point I want to make here is that if you look at what is
happening in terms of percentage you can see that sub-Saharan Africa,
like Asia, was on a downward trend of the percentage of children
that were orphaned until HIV/AIDS hit sub-Saharan Africa. And you
can see what that additionality—it doesn’t come out
quite so clearly but—the contrast between the top box and
the bottom. In Asia, we have had—as in elsewhere in the world—a
general decline in the number of orphans. Economic development,
better healthcare, education, women’s empowerment, etcetera,
but if you just start to see again, I’m sorry for the color,
but we are beginning to see as in parts of sub-Saharan Africa, an
increase.
But then we look at not percentages but absolute numbers. You can
see that, India, China, together as their populations are so large,
mean that historically even without HIV/AIDS, the orphan problem,
quote unquote, has been huge in Asia, but the trend has been overwhelmingly
positive in terms of absolute number reduction. But again we are
beginning to see those top boxes increase so the numbers are also
possibly increasing in terms of the additionality that HIV/AIDS
brings. And again, I am going to go through many of these slides
very quickly because of the time. And just to try to illustrates
the point in that we are now getting quite significant differences
between and within countries.
And the presentations will be made available so don’t necessarily
try and keep up. But I want to try and do is to come on to this
issue. Because we were talking about: there’s a change, there’s
a wave, between what’s happening in sub-Saharan Africa what’s
increasingly happening in Central and Eastern Europe—Russia,
Ukraine—and also now what’s happening in Asia.
But let’s bring this back to children. We also have a series
of waves in how children and when children get affected. The first
wave is when populations get infected. The second issue, then, is
the cumulative factor of when people get infected and start to die.
And then, there is a lag between infection and death. And then there
is the cumulative factor, the impact after that, of when we get
the number of orphans. So, for instance, in sub-Saharan Africa currently,
Uganda after many years has gone from just about 25-30 percent national
prevalence, down to 5 or 6 percent, and it’s quite a success
story. But it is only now that we are getting the peak of orphan-hood
in Uganda. So as much as everybody says that we have a success story
on our hand in reducing the pandemic in Uganda, the burden on the
state, the family, is now, because of the number, the cumulative
number, of orphans. And we can plot this out, as we have done in
Children on the Brink 2002 and we will do in the forthcoming [Children
on the Brink] 2004.
We currently have 11 million orphans due to HIV/AIDS. We project
in the region of 25 million by 2010. What we’re seeing, because
of the additonality, is that in some countries, primarily sub-Saharan
Africa, but increasingly elsewhere, we are beginning to see precipitous
drops in life expectancy, and reversals in hard wins gained around
under-five mortality and infant mortality. We are basically wiping
off ten, twenty, and in some cases of thirty years, in development
investment in countries. And of course when the adults die, it’s
at the peak period and is often some of the most productive people
around.
But for children, what we’re seeing is that for the most
part, there is a greater disparity now between a child who’s
orphaned and a child who’s orphaned because of HIV/AIDS and
even other poor children, in some of these crucial areas. And the
evidence on the orphan generation published by UNICEF and by others
shows this disparity on nutrition, education, healthcare, massively
on psychosocial impact.
But we are also beginning to see the state responses. This is probably
where we have quite the differential with sub-Saharan Africa. The
countries in sub-Saharan Africa, currently, which are the most heavily
impacted, are also the least able to cope. They have the most rudimentary
health system, they have the weakest and limited human capacity,
they have a development and investment gap. Overall they are least
able to respond. In Asia, one would hope, that at least in some
countries, the status of the health service, the status of the education
service, the government’s ability to provide welfare, social
welfare, etc., especially in countries like India, is quite developed.
The issue is, can they withstand the shock of a significant additionality
on their social welfare, social education systems? Already, as I
said, we are beginning to see disparity even within the Asia context,
and this is Indonesia and Philippines, between orphans and non-orphans
and double orphans—children who have lost both—and how
likely they are to drop out of school. I’ll skip the next
bit…
We really have over the last couple years, developed a consensus
around what needs to be done, we have the Millennium Development
Goals, we have UNGASS goals, we got the Goals for Children, and
within UNICEF, HIV/AIDS has become a massive priority. Since last
year, and the year before really—and UNICEF has brokered this
strategic framework for assisting children affected by AIDS—we
really do know now what needs to be done—strengthen families,
strengthen communities.
But I also want to emphasize, although we use the term orphans,
the children affected by AIDS is much wider than that. Children
are crucially affected during the illness of their parents. Their
formative growing up experience is sickness and death. They then
become orphans. And then they drop out of schools. Then they go
and live with other families and in addition to the orphans we’ve
got this increasing number of positive children. We really have
got a methodology, at least in process terms, of what needs to be
done. It’s quite clear that unless we know the extent of the
problem, where the problem is in the country, and how children are
specifically affected within their country and cultural context,
we can’t act. And we’ve been taking countries through
this five-point plan for a number of years. And from UNICEF’s
side, I think we are really trying to do five things: one is, we
have meetings like this where we convene around thematic issues,
country issues; we build partnerships; we try to provide the evidence;
and we try to raise and mobilize resources; and advocate for change.
In Asia over the last few years we’ve had a number of successes,
thanks to Nafis and many other colleagues, in getting global leaders
in Asia--the prime ministers, presidents, high personalities—to
come together. There has been a significant response by the Buddhist
community and I think that has really been some of the testament
of hard work by Robert Bennoun and others. And I think that in India
we are starting to see quite a successful rollout of mother-to-child
programs where we can, because we have the technology, dramatically
reduce infection between parent and child. And in China, for all
of the problems and sometimes the disservice people say about China,
we are beginning to see a change. I think we are seeing a change
in the openness, we’re seeing a change in the rhetoric and
I think we’re seeing a change in the policy. And of course,
I think one of the great things about china is that once there is
a commitment to make a change, it has the capacity to actually implement
it. But clearly, much more needs to be done. Thank you very much.
Nafis Sadik: Thank you very much Peter. I’m
sorry, this was a most interesting presentation, and I’m sorry
that we have to cut you off short. But the time is limited. Our
next speaker is going to be Sara Sievers. She is the director of
the Orphans Initiative at the Association François-Xavier
Bagnoud… She’s between both the academic and the active
community of people who actually work in the field and has hands
on experience in dealing with orphans and HIV/AIDS. Sara, you have
the floor.
Sara Sievers: Thank you very much. I’d like to thank, as
Pete did, the organizers of this event, the Gates Foundation, the
Asia Society. It’s a tremendously important challenge, the
challenge of children orphaned or made vulnerable by the pandemic
and it’s something that the organization that I represent,
the Association François-Xavier Bagnoud, has been working
on for more than fifteen years now. We’ve been involved, first
in the United States, setting up homes for children who were left
vulnerable by the pandemic in Newark and also in Washington, DC,
but quickly moved to about twenty countries, several of which are
in Asia.
I titled this talk, as you’ll see, Orphan Care: a Rights-Based
Approach. And the image I’d like you all to have in your mind
as we go forward actually comes from a wonderful political philosopher
of the 20th century named John Rawls, who wrote a book called the
Theory of Justice. And if we can sort of step back and have in our
minds something that Rawls called the ‘initial’ or ‘original
position’ and what his argument was and I think it is wonderfully
applied to how we approach caring for children who left in the aids
pandemic is in order to build a just society, the builders of that
society are the future inhabitants of that society but they don’t
know where they’re going to land when they get there. There’s
what is called a ‘veil of ignorance’. So imagine if
you will, that we are living in a world that we’re constructing,
which is probably accurate in many respects, but you don’t
know where you’re going to land. You know you’re going
to land as a baby and build forward from there.
The Association really feels very strongly that a rights-based
approach—there are many other ways of doing it—our approach
is a rights-based approach, for a number of reasons. We believe
that the fundamental characteristics of the programs that we implement
on the ground are distinct in ways that are characteristic of keeping
in mind things like Rawls’ ‘initial position’
or other forms of rights that have been more formalized in legal,
such as the Convention on the Rights of the Child.
I’ve excerpted just a couple of articles to get us in the
spirit of what more than 190 countries in the world have signed
onto already—not yet the United States, but I have a little
pitch at the end of those of you who want to do something about
that—that basically says what children are entitled to, how
we take this sort of vague political concept of children’s
rights and turn it into technical legal language. Look at the kinds
of things, if you will, that are included. I just pulled a couple
articles. As you can see there are many of them. Article 27, I thought,
was very notable because it starts outlining, as Pete explained
in some of the earlier slides, what children in this world are entitled
to, what are their rights when they come here, what are we, as adults,
obliged and we as state parties and as individuals and families
obliged to provide for them. I think it’s a relatively compelling,
non-controversial, list of things. And even more basically, if we
look at Article Six that states, “parties recognize every
child has inherent right to life,” not unreasonable, and states
parties “ensure the maximum extent possible the survival and
development of the child.” Now as we think about the statistics
that Pete gave us earlier and the level of intervention we are aware
of or non-intervention, given the scope of the pandemic, we may
not even be prepared to meet the basic requirements of Article Six,
which is a pretty modest bar. And the numbers of children for whom
we may not be meeting those rights is millions and millions and
millions and growing.
So in that context, the Countess, who sends her apologies that
she wasn’t able to be here, actually after having lost her
only child, channeled her energy into, and her financial resources,
into trying to right for the as many of the children as she could,
their lack of rights. As I said, we’re located in a number
of different countries. I, for obvious reasons, I decided to focus
initially on our program in (India) but I’m going to broaden
that a little bit into some of the Africa programs as well.
In India, what this sort of spirit of rights and child’s
rights has translated into on the ground is something we actually
call, orphan prevention. You get a sense by the size of the outreach
and the extent of the involvement and there’s another slide
that gives some more description of the project, I’ll give
some more slides as we go along. But essentially, as Pete showed
us, the number of children orphaned, or the percentage of children
orphaned due to the HIV virus, if you remember his charts, is somewhat
smaller in India compared to some of the places where the pandemic
has reached the curve proportions that he’s described. In
light of that, with an eye towards children’s rights and towards
children affected by the disease, we felt that prevention and preventing
orphans was a more important intervention, initially, in India than
anything else we could focus our resources on.
Some of the specific projects, and here, this emphasis on rights
is interesting: migrant workers, as we think about populations that
are particularly vulnerable to contracting the disease. Migrant
workers, people who are moving around. And so FXB started a project
in India that was basically, with Gates Foundation support actually,
traveling back and forth, looking at populations that were traveling
back and forth, within Rajasthan and in Mumbai, to get a sense of
what was going on there and to make interventions to try to prevent
transmission.
In addition, and this is one of my favorites: the Barber Intervention.
And the story behind this is quite hilarious, in my opinion. So
Albina was on the ground, trying to figure out what she could do
to try to help. Don Casey can correct me if I get this story a little
bit wrong, I’m new to the organization, but this story is
memorable. A barber came up to her and said, ‘Countess if
you really want to spread the word, you need to be active in barber
shops.’ Now who would have thought? It turns out, that in
the places where she was, the kind of discussions men have when
they’re getting their hair cut are the kind of discussions
that probably need to have a little bit of aids prevention thrown
in for good measure. We would never have known that from the outside,
but, or unlikely, but this barber felt very empowered to come right
up and explain what was going on, what was needed and how to focus
efforts. And it launched a whole initiative within AFXB, which I
think illustrates one of the points that we feel particularly proud
of: a real ability and interest in focus on listening to the communities
that we are working in and responding to the initiatives that they
bring, so that we can maximize our effectiveness in spreading messages
and giving services.
Again, particularly vulnerable groups, bars, pubs and wine shops,
so that’s another program we have going on in India, trying
to spread prevention possibilities and techniques there.
We also have been working in fishing communities. Now, we hear
a lot about the truck drivers. It turns out, in Albina’s words,
‘In some places in India, the fishermen are the truck drivers.’
Migrant behavior, various kinds of going back and forth, hither
and yon, and the kinds of at risk behavior that can be dangerous
for transmitting the virus. So we have programs that help to try
to try to prevent in fishing communities.
Here we have a more of a traditional program. We’re targeting
directly services to children of sex workers so that we can try
to target particular vulnerable populations. And this is one of
our oldest and most established projects in India.
Finally, tele-counseling, I thought it would be fun to see the
technological perspective tossed in. For a variety of reasons, sometimes
people don’t want to show up in person. The idea that you
can do some of these things via tele-counseling, is an interesting
adaptation.
Turning now to some of our programs in Africa, briefly, since the
program focused on Asia and the world. The nature of our programs
in Africa is a little bit different. It’s actually focusing
on care. So if you decide you feel particularly moved by the existence
of actual orphans, most of them are actually in Africa now, most
of the kids who don’t have adults taking care of them. We
started in Rwanda, about five years ago, and basically provide comprehensive
care for families or cobbled-together families in communities—it’s
a community based support initiative—to try to help not only
with making sure that all kids are able to go to school, so paying
school fees, or paying uniform fees, or any other costs associated
with going to school, but also making sure these kids are able to
access the local healthcare networks, to the extent that they exist.
And one of the things that I was most impressed with, when I was
first introduced to the organization, a really quite clever, simple,
but well conceived and locally driven and locally adapted micro-grant
program. Granny-loans, if you will, except granny-gifts actually,
without the loans. The idea is that families, that have very very
little, or women who have very very little, aunties, grannies, whoever
it is who are taking in three, four five, however many orphaned
children, need financial resources. And one of the ways of providing
those resources is through the micro-grant industry. In light of
the pandemic and financial burden and the disease burden, we don’t
require repayment. We give grants, in kind grants—beehives,
cows, whatever—which has worked out quite well. There is a
two-tiered system which is relatively unique in the micro-grant
world. Individual grants to individual—usually, but not always—women
and then also the women form groups together but not for purposes
of repayment, for purposes of collective support—they tend
to be positive, the women. So as they get sick, the other women
can step in and help with the individual projects. And then there
is also a group project that’s financed. So women who have
particular ingenuity and entrepreneurship are able to take their
individual projects and see it grow and blossom. And the women who
are ill or for whatever reason, have a bit more difficulty, tend
to be supported by the communal projects. And there are, at this
point, thousands and thousands of children and women in the AFXB
programs in Rwanda—beneficiaries who are taking advantage
of this system.
Turning now to the final program I’d like to highlight, very
briefly, and it’s one that we’ve started much more recently.
Community-based care is surely one of the most important intervention
but that is not always possible to pull off as a comprehensively
as we like, and it probably shouldn’t exist in isolation anyway.
We also are testing out in South Africa, various forms of school-based
care, after school programs, school meals programs, school fee elimination
programs where we finance those sorts of things. They’re only
a couple of years old and we’re still working on them but
we’re reaching at this point, hundreds and soon to be, we
hope, thousands of vulnerable children, particularly teenaged girls,
which in terms of sexual vulnerability, as a population in south
Africa, that faces many challenges.
So why does this focus on rights matter? The two parts of my talk
may seem somewhat disconnected. It matters for a bunch of different
reasons. For starters, we provide guiding principles based primarily,
actually, on an assumption of universal human dignity and then basically
toss programming and the specific use of financial resources fairly
wide open, for a real emphasis on local leadership, local definition
of what’s needed—the barber example—and adaptation
as needed—the fishermen example. There are very very few people
working on AFXB programs who are not from the country that’s
being served. And we’ve made that decision, in large part,
based on sort of the overarching ‘rights’ philosophy
and then finally from the outside we do do some, of course, some
conventional foundation oversight work. There’s financial
and management oversight and Albina, in particular, is very active
with that. We also have had, the great good fortune, of having a
very flexible funding source so we can afford to experiment, adapt,
and make mistakes without facing some of the pressures that conventional
foundations and NGOs would. We also feel that, based on this work
and based on what we understand of the needs, that we have a particular
responsibility to be active in the advocacy community.
And with that I’d like to thank you all very very much and
very quickly, if you want to do something on the Conventions on
the Rights of the Child before our next speaker comes, here’s
the UNICEF pitch actually. Pete, I got it from the UNICEF website.
Thank you very much.
Nafis Sadik: Thank you very much. I’m sorry
that all the speakers have to be rushed. Each one of them could
have spent the whole evening with you… Our next speaker’s
going to be Steven Wang. He is the founder and President of the
China AIDS Orphans Fund. And this is an individual who has decided
to do something, as an American, to help china. He is at the university
but he’s already very active in this field.
Steven Wang: Good evening. I would like to thank the organizing
committee for inviting us to share our experience and for allowing
me to share the podium with such a group of distinguished speakers.
Tonight I’m going to talk to you about our experience, the
China AIDS Orphan Fund in our effort to tackle this AIDS epidemic.
For me, I got involved in this project back in August 2002, when
I’d just left from New York City to Minneapolis, St. Paul
area, to start my residency program. It was a Sunday morning, august
25th, and when I read this New York Times article, by Elizabeth
Rosenthal, on my kitchen table, entitled: AIDS Scourge in Rural
China Leaves Villages of Orphans.
This is a section, I’m just going to read it for everyone:
‘200 of village’s of 600 families have one parent dead
and other ill, often too frail to work or even rise from bed; they
receive little government help; experts say blow dealt by AIDS to
villages like Donghu has been sharper and crueler than anywhere
else in world because of unusual and efficient way disease is spread
there; in 1990's, nearly entire adult population of some villages
was infected almost simultaneously as poor farmers flocked en masse
to sell their blood at blood collection stations whose unsterile
practices introduced hefty doses of HIV directly into their veins;
now victims are falling ill and dying, almost in unison.’
So ten years out, you can imagine, many of those parents are dying
and what’s left in those villages are orphans. As I delved
more into the subject, I encountered more horrifying facts. And
this is some pictures illustrating kids watching their parents dying.
And this is a child watching, sitting in front of the cemetery of
both parents. And those stones right here are the cemetery’s
housing the remains of the dead, often affected by the HIV virus.
In view of this health crisis, we decided to start the China AIDS
Orphan Fund. And the organization is initially founded in March
2003.
Our mission is relatively simple: to improve the lives of children
orphaned by HIV in central china, especially the Henan province.
We have four specific agenda: first deliver education for the AIDS
orphans. And as you’ve heard from the other prior speakers,
education is the key. Without education, they will be continually
disenfranchised and they will not have any chance to improve their
lives. Second: we want to provide humanitarian relief service to
the families. Third: deliver medical care and training. Lastly,
initiate some sort of foster care and orphanage programs. To do
this, our strategy is relatively simply, again. We want to raise
public awareness in the States, as well as internationally, via
communication through friends, colleagues, families and media. We
want to raise the appropriate fundings to support our project. Lastly,
to ensure the funding is spent effectively to help the victims.
The team behind this group… [Please refer to the China AIDS
Orphan Fund website for information on the CAOF team, at http://www.chinaaidsorphanfund.org/committee.asp.].
In addition, we have partners with local foundations. The Minneapolis
Foundation, which is the oldest foundation in Minnesota, established
in 1915, with some 135 charitable funds. In addition, we have partnered
with Give2Asia, which is a national organization founded by the
Asia Foundation. They have 17 offices throughout the entire Asia
region. The function of the three partners: First, for us, we want
to focus on building awareness, raising the funds to achieve objective.
The Minneapolis foundation gave us the credibility initially to
raise the money in the local area as well as the resources of advice
and expertise. The Give2Asia provides the due diligence service
because they have people, offices on the ground, to ensure the money
the organization that we are giving the money to, are appropriate,
and that they do the job they say they do.
So, what are our progresses? Since our inception in March 2003,
we have received a large number of coverage, especially in the Twin
City area. We had most of Minneapolis’s papers describe our
effort and we were on the Minnesota public radio station. So far
we have raised 60,000 dollars mainly from individual donors. Most
of them are from the Twin Cities area. We have also received money
from England, Canada, and other cities, including Chicago and New
York. And there are some touching letters. For instance a kid received
his birthday gift and decided to donate he money to us. In addition,
we have a dozen foundations, schools, and universities across the
country that have donated money to our effort.
This is the Minneapolis Timberwolves, and they’ve decided
to donate a thousand dollars. This is, I’m sorry, I apologize
for the poor quality of the picture, but this is a local school.
They decided to raise money for our effort. This is a local individual
who is a founder of the Circle 88 Group and they decided to raise
more than 10,000 dollars for us. And this is a group of Yale students
who tracked us down from the Internet and decided to raise money
for us.
In addition, we have a website; we release quarterly newsletters
and we decided to save as much money as possible to relieve, deliver,
all our news/media electronically.
Lastly, we created this Living Dreams in a Dying Village, which
is an art/documentary exhibit in conjunction with Chung To. This
is the title. This is a picture. In addition to the pictures, the
drawings by those kids, they also have Chinese essays by those kids
describing their hopes and dreams. This one says, ‘Doctor
is treating patient.’ The next one says, ‘Tomorrow will
be a much better day.’
In addition, we have delivered more than 10,000 dollars to Chi
Heng, to support 200 kids for one school year. We are in the process
of delivering another 10,000 to ensure those kids have another for
the upcoming school years.
Lastly, we initiated of the due diligence process to deliver 5000
grand to Amenity. Our effort right now is seeking and researching
other reliable and trustworthy NGOs that can receive the fundings.
What is our future plans? First we want to launch a national tour
of this exhibit. Tentatively the states, large cities, like Chicago,
San Francisco, L.A., New York, Boston, and Washington, DC. The reason
for this is to both raise awareness as well as raising fundings.
Second, we are planning an AIDS conference in Chicago and we have
lecturers, question sessions, to attract the public in this area.
But, the ultimate objective is to start a second chapter. If this
works, we plan roll out other chapters in other major cities. Minneapolis
is great but it’s too small, it’s not as wealthy as
other cities.
Now, what are our challenges ahead? For us, the most difficult
challenge, in addition to all other challenges faced by other non-profit
organizations, is identifying the trustworthy organizations that
are working in China. Because, in short, we have absolute responsibility
to our donors that the money they give to us will have been spent
appropriately. Next, in this effort, I’ve learned there are
other people, other organizations, that are trying to do the similar
type of work. I feel that we need to link up with them and to save
up the resources. Third, there are larger organizations, like the
UNICEF, like the Asia Society, that have tremendous money resource.
We need to tap into that. And most importantly, we need to speed
up our process. I think it’s too slow for us to raise the
money, go through the diligence process, [and] give [the funds]
to someone else to do the work. That process takes three to four
months. But it’s needed because we need to ensure the quality
of the work. Now, what’s the challenges faced by our community.
I may not be a good speaker. But from my point of view, I see there
are other communities out there, other organizations doing a similar
type of work. We need to conserve resources. And each dollar we
save by each organization, that money can be transferred overseas
to do the real work. In addition, I think a network, a database,
for ideas, information, for collaborative projects, needs to be
created. For example, we have this tour, this art exhibit tour.
But we don’t know who to give it to. We need to contact those
outside individuals, outside cities—that takes up energy,
time, and money. And also, there are people out there who probably
want to do the same effort, but they can’t find us. Wouldn’t
it be great if there were some sort of Internet-based ideas? Lastly,
there are tons and tons of people out t here who really want to
participate in this effort, but we have to let them in. We have
to let people to join in this effort. And I think with that, I’m
going to wrap-up.
Nafis Sadik: Thank you very much, Steven Wang.
I wonder what we did before all this technology came into existence…
So our next speaker is going to be Chung To, who is the Founder
and the Chairperson of the Chi Heng Foundation. You already heard
some mention of it and his association with Steven Wang. He is going
to tell us about his work in HIV/AIDS in China. And what he’s
doing as far as children are concerned.
Chung To: I’m very delighted to be here. Before I start I
really want to thank Elizabeth Rosenthal of the New York Times because
without her article I think I wouldn’t be able to hook up
with Steven and Steven wouldn’t be able to do all the great
work. I think she is here as well.
I will spend most of my time talking about our work, but just a
very brief background. In the AIDS epidemic landscape of China,
one place called Henan stands out. During the early to mid 90’s,
many peasants in that area sold blood and because of the unsanitary
practice, many of them got HIV. And now, ten years after that, a
lot of them have died and are getting sick.
If you look at the blue or green box over there from a UN report,
it kind of illustrates the extent of the problem. In 1998, they
cracked down on illegal blood collection stations and confiscated
over 6,000 bags of blood. And through a random testing of 101 bags
of them, 99 out of the 101 bags, were HIV positive. So this is the
extent that we are dealing with. And today in some of the areas,
we are talking about as high as 60 percent of the adult population,
in some villages who are HIV positive. And those are also the productive
force of the village. People who donated blood at that time were
also people in the 20s and 30s and 40s. So you can imagine the kind
of effect, or impact, to the local people. And one of the consequences
of this is the children being orphaned by AIDS. If you are talking
about as high 60 percent of the adults having HIV, you are also
talking about 60 percent of the children being orphaned by AIDS
as well.
I was able to visit Henan more than two years ago. I was very concerned
about the situation and I was shocked by what I saw. We have been
working on AIDS for a long time, and I have been working on AIDS
myself for many years as well. But I have never seen so much human
suffering, in such a small area. It became one of the reasons why
I’m working on this so hard. I began to understand also the
difficulty faced by the local government. We are talking about potentially
15-20,000 HIV positive people in one small little county, which
is already a poor county in china—below the poverty line even
by Chinese standards. That is about seven to ten times the total
number of HIV positive patients Hong Kong has to deal with today,
or more than the entire country of Japan has to deal with. So at
the time, while we are criticizing the government for not doing
enough, I also became very sympathetic towards local government
because of the limited resources. So instead of talking about it,
I decided to go in and help. Not only AIDS is giving them a hard
time, but also the export labor got rejected, foreign investment
were stopped and a lot of stigma and discrimination caused by the
media.
I visited the area at the peak of the people dying. In a village
with 2000 people, there were eleven funerals in one single day.
Only one person did not die of AIDS, the other ten died of AIDS.
And in another village during that summer, five people committed
suicide successfully, in one month. So if you annualize it, 3 percent
of the total population successfully killed themselves. Not to mention
that a lot more are dying of AIDS.
During one of my first visits, I visited a family, you could see
it’s a Christian family because there is a cross there. Actually
because of earlier missionary works there was a lot of Christian
families there to my surprise. At the time when I visited this family,
the father had already died of AIDS, leaving behind the mother and
two children. There was a little girl behind the mother who was
the older daughter and there’s a younger brother. When the
mother saw me she came up to me and asked me to help her son. I
said there might not be a lot I could do for your son, but I would
make sure that your daughter could go to school. And I will never
forget the images that I saw of people dying of AIDS, so horribly.
It is not about just dying, it is dying without dignity. I think
they deserve to die with more dignity. I thought I would only be
seeing images like this in Africa but this is happening just a few
hours away from Beijing by car. So a few months later I visited
the school making sure that the daughter could go to school and
there she was. It was wintertime and she was in winter clothes.
I think that is the spirit of our project, which is to help the
surviving children to live through the disaster by giving them an
education. You could imagine also the psychological trauma that
this girl had to go through, seeing her father dying of AIDS, and
also her younger brother dying so horribly of AIDS. Her mother also
might be HIV infected, if that were the case, [the daughter] will
become a true orphan.
And after four semesters of low profile work, we started with one
village with 127 orphans, we are now helping over 1200 orphans in
13 different villages, from pre-school to college. This makes us
the oldest and also by far the largest non-governmental effort for
AIDS orphans working in China, at least for the blood selling effort.
I noticed a few trends; I’ve been to Henan 16, 17 times over
the past two years. One is that the grandparents are assuming the
role of the parents after the middle generation was wiped out. These
are grandchildren living with the grandparents. They are not siblings
of each other, but they are cousins of each other. That means that
when the parents died, they would be sent to live with the grandparents.
The grandparents had four children, all four got HIV. Two have already
died and two more are dying. The black and white picture was taken
two years ago, this was taken last month or a few months ago. And
you can see the children have grown up a bit. This is the youngest
son, who is also dying, and actually, two weeks ago, when I saw
him, he said, ‘Well, next time when you come, I might not
be around anymore.’
The children sometimes become the head of the household. You will
see that if the oldest child is old enough, maybe 14, 15 years old,
they will become the head of the household, taking care of the younger
siblings.
We also see a reconstruction of families. The man is the father
of three children (one is not seen here) and the mother is the mother
of two other children. They got together not because they are romantically
in love, but because of survival. I think we see this in Africa
as well, a lot of provisional families. I admire the children a
lot because they not only have to bear the physical burden of doing
the housework and making dinner but also the emotional burden of
helplessly seeing the deaths of their parents in front of them.
Most of us do not have to deal with the passing away of our parents
until we are 40, 50 years old. But when we have to deal with it,
we still have a hard time dealing with it. But these children have
to prematurely deal with this when they are so young.
I see a lot of humanity and filial piety in this effort as well.
This child, when I first visited this child, he was using the wooden
cart to push his father around to get some fresh air. And it was
completely spontaneous and completely out of his love for his father.
His father past away shortly after and there he was also at school.
HIV is also killing the children. I will skip the other stories
because of time.
Many people ask me why I’ve chosen to work on the orphans
in that area. I think there are many reasons. Orphans will affect
the future social stability tremendously. China admits it has a
million people living with HIV or people who have died of AIDS.
If we are talking about a million people with HIV or died of AIDS
we also are talking about close to a million or more children impacted
by AIDS. If they cannot get an education now, if they are not being
cared for, when they grow up, they will be gangsters and street
kids, move to big cities. Most of them are HIV negative and they
would be in the society for 60-70 more years to come, therefore
creating a huge force of social instability. There is also a sense
of urgency because the numbers are growing quickly and there is
only a narrow window of opportunity for helping them because if
they have missed school for a few semesters, it is hard for them
to get back. Also, it provides a lot of care and comfort to the
AIDS patients, directly. That means their parents. I have talked
to a lot of parents who said, ‘I know I’m hopeless,
I know I’m dying, but I’m very concerned about my children.
If I know my children can go to school, I can die in peace.’
And also it’s less politically sensitive. Two years ago, when
we first started, there was a practical reason. And also to send
a message to these orphans, who might have a lot of hatred in them,
thinking that the world is not fair to them and that their parents
died unnecessarily, that there is love and hope in the world. That
someone that they do not know is giving them an education and hopefully
they will reciprocate when they grow up. Also, education for the
next generation is also a social resources investment.
I mentioned the work so far which we have done and there are a
few unique aspects of the project. One is that we would fund the
students village by village. We take care of all the qualified children
in one village before we move to the next so that we avoid unnecessary
competition and antagonism. They don’t have to compete and
look poor and pitiful in front of us in order to get a sponsorship.
As long as they meet the criteria they will get it. And the criteria
is very scientific and objective: either their parents HIV or not.
Unlike some poverty relief programs which can be very difficult
in due diligence and subjective, this is a lot more objective. It
makes our job much easier. And also once their parents HIV status
is confirmed [the status] cannot go back and forth. They cannot
become negative and positive. We will continue to sponsor, we want
to help students all the way, at least up to ninth grade. And we
also do not give money to the children or their parents or their
family. We give money directly to the school so that they only have
a choice whether to go to school or not. And so far the dropout
rate is about two percent, which is quite low. I think most kids
do take up the opportunity to go to school.
I think the challenge is sustainable funding, because we want to
expand. Based on our research in the three counties that we are
working in, we have the potential to expand to seven to eight thousand
children but the challenge is how can I have enough funding to sustain
it. Because I don’t want to run out of money one year and
have to tell the children, ‘Sorry, we can’t help you
this year.’ And another challenge is to expand geographically
to more villages. The third is that I’m moving from quantity
to quality. That means that in addition to providing a basic education,
we also want to help them in many different areas such as psychological
support, such as art therapy—you see the drawings and essays
that are outside [the auditorium]—and summer camps, field
trip for their self-esteem, vocational training, and also we hope
to start ARV for the children. Out of the 1200 children, we some
of the children in our program are HIV positive and I hope to provide
them with ARV. But that is another big project.
In closing: I met this guy two years ago before he died. That’s
his son over there and I talked to him a lot that summer. He has
died since then. He actually had five siblings. All five, including
himself, were HIV positive. So it is another example of the middle
generation being wiped out. You could see the grandmother in the
middle. The grandparents had six children and all six got HIV. When
I first visited this family two years ago, two had already died
of AIDS, and four more were dying. And last month, when I went to
the same family, five of the six children had already died of AIDS.
Only one is surviving. And I asked the grandparents, ‘What
keeps you going? I mean, it is such disaster for your family.’
And the grandparents still had to work very hard to make a living
and to take care of all the grandchildren. And they said, ‘The
grandchildren, the future, our hope. I know all my children have
died of AIDS or are dying of AIDS. I know all my children will be
wiped out by AIDS, but I still have hope because I have the grandchildren.’
And that’s why I think, in order for them to survive this
we have to help the generation of children. And I’m very grateful
that over the past two years I was able to help a group of desperate
people when their suffering was unknown to the world and when outside
help was not available. So I will end here, thanks.
Nafis Sadik: Thank you very much. I think another very touching
example of what an individual initiative can do. I‘m sorry
that we don’t have enough time to listen to everybody. Our
last speaker, and I don’t envy him, and not the least, is
David Gartner. He is the Policy Director for the Global AIDS Alliance,
which I think everyone is familiar with. David, you have the unenviable
task of being the last.
David Gartner: Before I start I want to apologize, because I didn’t
bring any technology today, so… But quite seriously, I want
to thank both the Asia Society for having this and the Gates Foundation
for helping to put it on. And I want everyone to recognize the collection
of people here today is actually leading the way in terms of sounding
the alarm about the orphans crisis. Because we’re hearing
more these days about the AIDS crisis, but the orphans crisis remains
the stepchild of the AIDS crisis and it’s exciting to be with
people who are leading this charge both nationally, internationally,
and in a region and a country, in china, which has gotten much too
little attention.
So with that introduction, the purpose of my talking to you today,
is I want to talk a little bit about why there some reason for hope.
To begin where Chung To ended. There are lots of reasons not to
see hope. To put just the statistics back on the table again: the
CIA is estimating that 100 million people will be infected with
HIV by the end of the decade. If you look specifically at Asia,
India’s in the single digits now, in terms of the percentage
of people with HIV, far lower than Botswana, which is near 40 percent.
But India can stay in the single digits and still become the country
with the most people suffering from HIV and AIDS. So the implications
of the crisis for India, for China, are frankly staggering.
This is, quite simply, the moral crisis of our time. But it’s
not only that, it’s also a national security crisis, one that
frankly gets for too little attention in a world where attention
is focused elsewhere, on other issues. Colin Powell gets this though.
He said, ‘AIDS is more devastating than any act of terrorism
than any weapon of mass destruction.’ Quite frankly, I would
argue it’s the biggest threat we face in the next generation.
And the orphans crisis is the sort of terrible and natural extension
of the AIDS crisis. Every fourteen seconds another child becomes
an orphan because of AIDS. And if you look down the road to that
hundred million people infected by the end of the decade you can
only imagine how many millions and hundreds of millions of orphans
we potentially could have in the world.
So with that, I want to argue to you that there is reason for hope
and there are things that people are doing now and frankly the things
that people in this audience can do that can make an enormous difference.
So first, why is there reason for hope? Well to take the AIDS pandemic.
Only a decade ago, people weren’t paying any attention, frankly.
And it wasn’t clear what could be done, to many. A couple
of things have changed. One is the emergence of political will around
this question, particularly around AIDS—hopefully soon around
orphans, and I want to talk about that. Second, the dramatic decrease
in the price of medicines, which can keep people alive, dropped
to a dollar a day. This didn’t happen by accident, this happened
through lots of hard work by activists and others. It’s now
as low as 37 cents under what the Clinton Foundation has negotiated
with generic producers in India and elsewhere. So, for far less
than a dollar a day, people can be kept alive. The third reason
for hope, and I want to talk a little more about this, is that there
are new mechanisms out there, new models of how to respond to this
crisis. One I want to talk a bit about is the Global Fund to Fight
AIDS, Tuberculosis and Malaria. The reason that’s so important
is because it’s particularly giving some attention to the
crisis in China, in India, and elsewhere.
So what can we do about this crisis? Quite frankly, as I was saying
before, the orphan crisis remains the stepchild to the AIDS crisis.
Last year, the President made a path-breaking announcement at the
State of the Union. Congress decided to pass legislation, and, frankly,
Congress went beyond the President in its level of funding both
overall and for the Global Fund. Included in that global AIDS legislation,
not much noticed, was an amendment that was offered by two congress
people. One, Dana Rohrabacher, a conservative from California; one,
Betty McCollum, more on the liberal side from the Twin Cities in
Minnesota. They got together and they said, ‘If we’re
going to take on this AIDS crisis, well we better do something about
orphans, too.’ And they introduced an amendment that said
ten percent of this global AIDS funding, ten percent, not a lot,
should go to deal with the crisis of orphans. And it passed. And
we’re still not there yet in terms of even spending ten percent
of the overall AIDS funding on orphans, but it was the beginning
of building the political will around this orphans crisis.
I work with a group called the Global AIDS Alliance and it’s
part of a broader coalition called, the Global Action for Children
Coalition--which includes lots of the leading churches and service
providers like the Hope for African Children Initiative. One thing
that’s happened this year is that the organizations in this
Coalition are working together and working with some of those very
same people in Congress. We put together a Bill called the Assistance
for Orphans and Vulnerable Children Act. Now, what that Bill is
about, is trying to paint the framework for a comprehensive response
to this orphans crisis. And to help build political will around
responding to the orphans crisis, so that it’s no longer the
stepchild that I described. One of the exciting things over this
past year, when, quite frankly, the momentum around AIDS, the way
it got attention on the front pages last year, has not been the
same this year. But one of the exciting things, in a more quiet
way, this legislation has gotten the support of nearly 100 members
of the House of Representatives. Broad across the spectrum. It actually
passed unanimously through the relevant committees. Pretty soon,
my hope, and I’ll get back to this, with your help, I think
it can become law. So we can move from the place where people stuck
in a little amendment to say, ‘Hey, orphans, too,’ to
a real piece of legislation, saying, ‘we need a comprehensive
response to the orphans crisis. So that’s one thing that I
think we can work on.
But another thing, to get back to a point that was made earlier
by Sara, is orphans prevention. Quite frankly, we’re never
going to get ahead of the orphans crisis unless we take seriously
the new hope there is around treatment and keeping parents alive,
and keeping the kids alive too, because many of these orphans are,
in fact, HIV positive. So in terms of orphan prevention: people
here should know that the President’s initiative is going
to have enormous focus in fifteen countries. Those fifteen countries
are in Africa and the Caribbean. So, Asia is not part of that plan
at present. Maybe it will be in the future and a number of people
have suggested that India should be added as a fifteenth country.
I don’t think that’s what’s going to happen—I
think Cambodia may be added. But that still leaves India, China,
and much of the region, without support from that particular initiative.
There are efforts going on from the private sector, from the foundation
world—the Gates Foundation is doing a lot of work in India.
But then that brings me back to the Global Fund. So the Global Fund
is an international mechanism to deliver financing to scale up treatment,
to scale up prevention, and hopefully, in the future, will take
on more of the work around orphans as well, specifically. It’s
using this extraordinary reduction in the price of these drugs and
it’s starting to bring them to people now. What’s worrying
to me frankly, is that a year after this great breakthrough, the
proposal in the Administration’s budget is to cut the Global
Fund by 64 percent. That’s a real problem. If that happens,
the Global Fund will not be able to renew its current grants, let
alone have another round of grants. Just so you know, there’s
something on the order, nearly three billion dollars of new proposals.
And these proposals are bubbling up from the bottom up. It’s
a really exciting thing. It’s a mechanism that’s bringing
together private sector, religious community, NGOs, in the field,
to try to come up with proposals, coordinate them, and have the
world’s leading experts pass judgment on them. So what I’m
saying to you, is without stronger political support around AIDS
funding, particularly around funding for the Global Fund, the steps
that we’ve made forward in orphan prevention are going to
be left by the wayside. So I don’t want to forget that, even
as we’re focusing on the orphans crisis.
One of the things that Chung To was talking about was education,
and how important that is for the next generation. Certainly, the
parents here get that. And if you were dying of AIDS, you would
probably get that even more. One of the biggest barriers to the
adoption of AIDS orphans, is that nobody wants to pay the fees because
public schools don’t exist in much of the world. Nobody wants
to pay the fees that it takes for them to go to school. So AIDS
orphans are left with a double bind. They can’t afford to
go to school in much of the world, and in addition, nobody wants
to adopt them because they don’t want to take on that financial
burden. They are part of a broader group, mostly girls, but it’s
over 100 million kids who never step into school for the first day.
Here, again, I just want to point to some new models and new opportunities
for hope. To take an African example, in Kenya, within the last
year, there’s new political leadership that stepped up to
the plate and said, ‘We want to get rid of these school fees.’
They did this actually before the international community stepped
up and offered anything. They just said, ‘We’re going
to do it.’ As a result, more than a million more kids are
in school today in Kenya. It’s hard for me to think of much
in the world that leads to such dramatic change. In the end, the
international community did step up when Kenya went hat-in-hand
to the IMF and the World Bank, ‘Will you help us?’ But
that’s not good enough. And what I want to propose to you
today, and one of the things that’s included in that legislation
that I mentioned, is that we need to be moving towards making this
a universal, international right, to get back to Sara’s point.
We need a mechanism, we need a basic education incentive fund, that’s
going to encourage countries to follow Kenya’s lead and to
do it not with just hope and hat-in-hand, but to do it because we,
as part of this global community, think that these kids, these orphans,
deserve a chance in this world. So, I’ll come back to that
as well.
Finally, a lot of these kids are HIV positive. As their parents
die of AIDS, either through birth or breastfeeding catch the disease.
Very little is being done right now, in terms of treatment of kids
with HIV. It’s sort of startling frankly, because you think
people would start there and then build up. But that’s not
how it worked at all. So, one of the things that also included in
this piece of legislation is a focus on pediatric AIDS, the treatment
of children. But this is an arena in which we don’t have to
rely only on legislation and what the government can do. There’s
lot of good work that the folks at UNICEF are trying to do. There’s
also a new group out there, that’s actually directly providing
treatment to children. It’s called Keep a Child Alive. Leigh
Blake is founder, I don’t know if she’s here or not.
It’s really working in exciting ways to capture the public
imagination and say, ‘Look, for about a dollar a day, you
can actually keep a child alive.’ It’s a pretty remarkable
translation of the new hope and opportunity there is given this
reduction in prices in medicine.
So just to turn it back to what the people assembled here can do.
This has been a pretty powerful, but also, frankly, devastating
survey of what’s going on in the world today. And I want to
just offer a couple of things that the people here, assembled, can
do. One is around that piece of legislation, so that orphans is
no long a stepchild. You can call your member of Congress and your
Senator and say, ‘I want you to support, to sponsor, to lead
the effort on orphans. I want you to support the Bill numbered HR4061.’
Pretty soon it will be before the full House of Representative.
You can call your member of Congress and say, ‘Please support
that.’ You can call your Senator and say, ‘Please support
that.’ In addition, you can call them and say, ‘I want
you to support funding to eliminate school fees.’ And you
can call them and say, ‘I want you to, at least, restore funding
for the Global Fund to Fight AIDS, Tuberculosis, and Malaria’—and
frankly we need to do much more.
But it’s not only through calling Congress. To get back to
what you can directly do, you can help treat children today. The
website of the group is called keepachildalive.org. Take a look.
That may not be the way you want to contribute. You may already
be contributing through other means. But these are two very specific
things you can do as you walk away today. And then more broadly,
frankly, we need to build the kind of political momentum in this
country as was done with AIDS. And it was done by bringing together
wide sectors, from the evangelical community to the African-American
community, and folks in the gay and lesbian community have been
fighting around these issues for decades. We need to build that
same kind of broad constituency, here in the United States and around
the world, on orphans. Because otherwise, it will remain the stepchild
and for all the good of the conversations we’re having here
today, those hundreds of millions of orphans will still be left
in a world without parents, without teachers, and without hope.
So, I hope you’ll join me, and the others on this panel, in
changing that future. Thank you.
Nafis Sadik: Thank you very much. UNICEF, obviously, you have a
very strong ally here. We have a few minutes for questions.
Question: I have been concerned with the Convention on the Rights
of the Child and it’s passage in the United States, and have
been following the work of UNICEF for many years and know they’ve
made great strides in reducing infant mortality, particularly through
breastfeeding. I know breastfeeding is a concern today, because
on the one hand, it can provide life for a child in areas where
there is not formula readily available or clean water. On the other
hand, it could be death dealing. Could someone respond to measures
that are being taken?
Peter McDermott: I think it’s actually a very very good question,
and thank you for putting it on the table. As you know, one of the
biggest difficulties we have, even in non-AIDS situations, is keeping
children alive and the lack of clean water, mother’s knowledge,
caring practices, is a major problem. But on the other hand, it’s
quite clear from 20, 30, 40 years of research on what the benefits
of breastfeeding are.
The compounding factor that we have clearly in an HIV/AIDS environment
is that although we can use the new technology of nevirapine and
AZT and the combination, to reduce infection between mother and
child, there is then a degree of infection through breastfeeding.
And then we have this real dilemma, as do mothers. Do you then not
breastfeed, and use formula? And in those cases where it can be
used appropriately, and safely, and effectively, with the mother’s
knowledge and clean water, etcetera, then that’s fine. But
in fact those conditions do not avail themselves in most parts of
the world. Or do you then continue to breastfeed, and then have
the percentage chance you will infect your child? And it is a real
dilemma. And the big issue, of course, is to make sure that the
mother, and the mother’s care practitioner, can actually have
clear guidelines so that they have informed knowledge and choice,
and that they can be counseled appropriately. In fact, there is
some very exciting work that’s probably, I need to be a bit
careful about what I say, that will be presented in Bangkok in literally
eight to ten weeks. A study of 14,000 mothers, many of whom were
positive, in Zimbabwe, which shows actually that through good counseling
and exclusive breastfeeding, we can reduce quite dramatically infection
rates through breastfeeding. So I think that there is work in progress.
It’s a very difficult decision for the mother to make and
I think that the bottom line comes down to this ability for UNICEF,
and others, and partners to make sure that mothers are counseled
correctly and that they make an informed choice. Thank you for the
question.
Chung To: In one of the counties that we work with, beginning 2002,
there was a UNICEF program for antenatal prevention. But it was
a single dosage nevirapine treatment. But we learned afterwards
that there was no funding for formula. So we actually gave some
money to the county government, so that they could have the formula.
Since then, the county government has realized how important it
is and they have taken up the measure to provide the formula themselves.
Question: I think it’s notable that the areas where there’s
such high prevalence with 60 percent or more prevalence in China
are the result of unsafe, dangerous medical practice. In this case,
unsafe blood practice. And there are statistics also from World
Health Organization that suggests that unsafe medical practices
are one of the leading causes of HIV/AIDS spread. One of the other
notable pieces of data is that in India, 24 percent of disease spread
is due to reuse of injection devices. My question is do you think
there’s enough focus being placed on unsafe healthcare practices
which are prevalent in the developing world, and not only from the
standpoint of funding but also a policy setting, policy influence
and knowledge transfer—does there need to be more emphasis
on this?
Peter McDermott: In particular, given the fact that Steven and
Chung did such wonderful presentations earlier about putting the
human face on this. I mean it’s easy to give the global statistics.
First of all, as China illustrates—if you don’t get
the fundamentals right, i.e. protect your blood sources, you can
have a disaster as we have in China, massively. And I think that’s
a concern in China but in many parts of the world and perhaps we’ve
underestimated that. And I’m glad to say at least in sub-Saharan
Africa there’s been a massive attempt to try to get blood
supplies secure. I think that what has happened in the last at least
three or four years, again…[transcription unavailable].
…private practice or in the informal sector or in particular
among drug using groups, there is a tendency to reuse needles and
I think we have underestimated. We’ve been seeing a blip in
the number of young children—South Africa is a good case and
point—who are HIV/AIDS positive and that cannot not be correlated
with transition from the mother. So I think that the work WHO has
done in the last couple years in terms of trying to renew safe practice
around needles, needle exchanges, needle destruction, and getting
new policies for governments is coming down the stream. But if we
don’t get a handle on it, clearly it’s going to be a
major area.
Sara Sievers: I am more familiar with the statistics on Africa
and there was some articles I believe in the Lancet and elsewhere
throughout the course of the year that have basically highlighted,
frankly, medical practices and a correlation between high prevalence
areas and areas in Africa that had medical clinics. A correlation,
not a causality was demonstrated.
And I agree with Pete completely, we want to find out what’s
going on. One of the curiosities for me is always been that we don’t
really have, that I’ve ever been able to see, a comprehensive
explanation of how the pandemic in Africa has spread the way that
it’s spread to the countries that it’s spread. We don’t
actually have a great explanation for that yet. There are a series
of hypotheses that have been tested empirically a variety of ways,
but we can’t definitely really explain. And one of the things
that people thought for a while particularly this here might be
interesting to look at, was this question of correlation that you
raise. And I think we should look at it.
But we shouldn’t be distracted from the fundamental drivers
of the pandemic which are basically a lot of practices that a lot
of times we don’t like to talk about very much. About people
doing things that we think are not very pleasant for public discussion.
So while in no way shape or form would I ever say, don’t focus
on safe medical practices, absolutely. Let’s not let it distract
from what we understand and know to be the main drivers of the pandemic
in most places, with notable pockets of exception, which are these
sexually transmitted methods and needle exchanges because of drug
use and a variety of other things.
David Gartner: In contrast to orphans where that 10 percent never
turn into a real earmark. Actually, safe medical practice is one
of the few things of which there is an earmark within AIDS funding.
So, I think it bodes well for that issue.
Question: How come in some Asian countries, religion, ethics, or
morality, has helped these countries to keep their child incidence
low like Bangladesh, Pakistan, Saudi Arabia, like it did in the
Middle East. And if that is the case, do you think that asking others
to obey some ethical rules—we can ask people not to smoke,
not a drink alcohol before 18—can we ask people to behave
and come to sexuality and make laws to make it a better world. We
have made this world a very loose place. Can you bring laws and
spiritually to make incidence of HIV go down by looking into the
Muslim countries where the incidence is very low?
Peter McDermott: I tried to infer earlier, that we have to be really
clear about what the key determinants are within different regions.
First of all, biologically, the virus is not the same. The HIV/AIDS
virus we have in North America, Europe, Africa, Asia—they
are different. And within those different viruses, HIV/AIDS 1 and
2, you got the different types. But the second point is that we
know that there are certain protective practices. And there is a
lot of work that’s going to be published in the Lancet later
in this year, which clearly shows that, USAID has been funding the
trials for the last couple of years now, that male circumcision
is actually quite a protective factor. I don’t want to give
a percentage here because the results are not there. The correlation
between male circumcision and Islam is actually quite very real.
So there is a protective factor there. The second issue is that
I think most people would agree with is within not just the Islamic
community but also in a lot of traditional societies that there
is still a strong moral family code and religious ethics and behavior
and sometimes this can be very powerful and overpowering maybe,
but it does exist and that’s one other. The other issue is
that there is, again, not causality but correlative factors about
polygamy because if you’re sort of having a small family unit
and you may have multiple partners but you don’t go beyond
that group for sexual activity, you do actually manage to contain
infections—not just HIV/AIDS but sexually transmitted disease
and etcetera. So, there is a combination of factors that are not
peculiar to Islam, there are other religions around the world that
have similar, if you like, key determinant protective factors. But
taken together, and if you do look at the map in terms of overlay
there are quite key overlays between certain religious beliefs,
male circumcision, the existence of polygamy and strong moral codes
and the outbreak of the epidemic, in conjunction to how strong the
infection rate of that particular virus is in that region. And I
want to emphasize the biology as well as the sociology.
David Gartner: I guess I was going to make a sociology point because
I think what your question touches on, in addition to spirituality,
is prevention, and how do you prevent the disease. And there is
a very live debate between the A, the B, and the C—the Abstinence,
Be faithful and Condoms. And everybody points to Uganda and everybody,
quite frankly, draws different lessons. For the most part the administration
is pointing to the A –the Abstinence. Some people who I quite
respect are pointing the B, and saying it’s Be faithful, that
zero grazing had an impact. And some other groups that I really
respect are pointing to the central role of Condoms, especially
in a world in many cultural contexts, in which women really don’t
have choices and are faced with situation where sex is coerced.
So, what the group that I work with would argue is that you really
do need a comprehensive approach and quite frankly I’m worried
by the current state of the debate, where it looks like the A really
is trumping the B and the C. Because unless you have all of them
together, I think we have a lot of reason to worry about the future.
Nafis Sadik: I think also we have to remember that in many of our
societies, male risky behavior is condoned or even accepted and
is considered macho, but it is the female behavior that is not.
And many women especially in South Asia but also in Southern Africa
are getting HIV infection from their spouses. And all the data,
for example, in Asia, South Asia, shows that 95 percent of them
have just the one partner, but the infections come from that one
partner. And they have got it from somewhere else.
So I think it is not correct to say that any particular, I mean,
all religions, I mean all people can be infected, anyone, everyone
in this room is at risk unless they behave appropriately. I’m
not sure it’s to do with any particular region, religion,
or whatever. It is what you have been educated and brought up and
your own inclination. And I agree with David that a comprehensive
approach is the best approach because it is a deadly disease and
the only true way to stop it is to prevent any new case. However
we deal with those are already infected and the consequences of
the disease. But if you want to eliminate it, you really have to
find a way to not get the next infection. And what are the ways
to do that? And I think Abstinence, Be faithful, using a Condom,
whatever, education, all of these, I think we have to use.
I think that the debate is as you said, this or that, I think that
this choice is not really something we can afford to make. I think
we have to have a holistic approach in which all strategies and
all approaches have to be available in the country. I don’t
want to be a terror, and start talking so much, but for example,
even in Pakistan, there are 80,000 cases, at least the estimates
and the estimates are increasing. And all the groups, which in fact
if you have these pure societies you shouldn’t have sex workers,
you shouldn’t have intravenous drug users, you shouldn’t
have sex outside of marriage, but all of this exists in all of our
societies.
So I think everyone is at risk and you may have the religion but
not everyone necessarily follows. And that’s, I think, the
challenge. You can’t legislate that. I think you can try to
teach it.
Question: My question is specifically for Mr. To. I think your
last point that education and treatment should go together is a
brilliant point and I know that a project that’s being funded
by the Global Fund for TB, Malaria, AIDS are be implemented in China
in southern provinces, including Henan. I wonder since you work
directly there, how are people really complying with the treatment
given the really wicked and debilitating side effects?
Chung To: I think that there are a few issues. Don’t be confused.
Number one: the Global Fund has not been implemented. It has been
approved. You are right that it includes Henan, but what you are
reading in the news today is an ARV program funded by the Chinese
government, not because of Global Fund money. And the ARV program
has a few issues: one is that the regiment is quite outdated. That
is not China’s fault. Because of the WTO and the patent restrictions,
China cannot manufacture the most updated drugs with fewer side
effects. Although there have been talks and lobbying groups advocating
that China should exercise its compulsory licensing rights to make
the more effective drugs. But I don’t want to get into that.
But the side effects are true. Also, the adherence rate is low
and even the Chinese government has admitted that. But it is because
of a lot of reasons. Because of the timing, the Administration lacks
experience. I think some people in the government initially thought
that, ‘Ok, we want to solve the problem,’ so giving
them the drugs is the problem. But they don’t realize that
this is not Tylenol, this is not aspirin that you can give, ‘Here,
take it.’ There is a lot of follow up and monitoring to be
done. And I think the Global Fund would address it and also the
government is addressing it. It is training a lot of local doctors,
so it will take time.
But of course there’s the other issue with AZT, what happens
18 months later, in terms drug resistance. Adherence now is becoming
less of a problem. Distribution also is another issue: that means
people are not getting it, or may not be getting it evenly.
So, the ARV and the treatment program, there is still a lot of
difficulties, but at least it shows the determination of the government.
I was quite surprised by how quickly the government moved. Largely,
thanks to SARS, that in the past few months how the government progressed
from a state of denial—that means, ‘we don’t have
an AIDS problem’—to now admitting they have a serious
AIDS problem and seriously addressing it. Not to mention addressing
the drug issue, paying for free testing issue, infrastructure building,
and etcetera. So I am seeing extremely rapid progress but there
is still there is a lot to be solved.
Question: My question is also for Chung To. You said that you dealt
with orphans in education programs because it was politically less
sensitive. And I’m wondering, in your experience, what has
been the reaction of the local governments when you go into the
villages?
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