7. Special Programs and Outreach
Special programmes for improving health need to planned and carried out in the poorest regions of the India. These would include workers of the informal economy, especially women, tribals, poor desert communities, artisans, salt workers, gum collectors and other vulnerable groups.
These special programmes should include occupational and overall health, mobile dispensaries and RCH clinics and other ways to reach services to people's doorsteps responsibility for implementation may be given to local people's association, unions, or NGOs actively working with these communities.
8. Tuberculosis as a priority
Tuberculosis (T.B) is a major source of mortality and morbidity. India is already implementing the Revised National TB Control Programme (RNTCP) in several districts, through the DOTS approach.
The latter has been found to be an effective but very labour intensive strategy. Again, without the kind of partnerships mentioned earlier, it is unlikely that we will be able to make significant changes in the prevalence and incidence of TB.
DOTS necessarily entails a localized, decentralized approach, with implementation by government and others who can invest the time and energy on individual patients. Our experience in collaborating with government for TB control through DOTS has been positive. There is now a need to upscale and expand this to include a number of districts in our state of Gujarat and others.
9. Capacity Building of Local Personnel
There is a tremendous need to strengthen the knowledge and skills level of both government health functionaries and local traditional healers like herbalists, bone-setters and 'dais' (midwives).
As far as government functionaries are concerned, their whole training has to be examined and altered to ensure a more community-oriented and holistic approach. Sensitization has to be built in through exposure trips, partnering with people's organisation and NGOS and more field experience. Our experience at SEWA is that when we work together with government doctors and other health functionaries mutual learning occurs. The health functionaries say that their whole way of working and communicating with the poor undergoes changes. In addition both government and non-government health personnel need constant encouragement, support and even ongoing sharpening and deepening of their knowledge and skills.
Similarly, local healers need a tremendous amount of encouragement support and capacity-building inputs. First of all their valuable contribution towards maintaining the health of local people needs to be recognized. Their experiences, skills and knowledge need to be respected and used as a base for further strengthening of these.
The current tendency by some policy makers to wish away these traditional health functionaries, hoping they'll simply disappear from our villages, must be replaced by a positive approach to these healers. We should recognise that they are not only part of our cultural traditions but also that they are here to stay because they are useful to local people.
In fact, they are a tremendous resource and if involved in need-based training and then constant dialogue and engagement with the government and private health practitioners and policy makers, local healers like 'dais' can provide services to many people currently not obtaining these. For the capacity-building and skills upgradation of dais for example we need 'dai schools' in every district, run by a technically competent trainer committed to transferring her knowledge and skills to dais. Each dai would then be registered, have an identity card and could even be assigned some tasks - antenatal visits of all pregnant women in the village for example. At SEWA, we have started a 'dai school'. We find that dais are not only enthusiastic about learning, but also that their newly acquired skills result in greater respect in their communities. The latter now pay a fee for their services.
10. Disbursing Low Cost Drugs
Immediate action needs to be taken in the matter of making low cost, safe and good quality life-saving drugs to the people of our state. One of the major medical costs borne by the people and leading to poor compliance of treatment, is the prohibitive cost of many drugs on the market. When people's cooperatives sell low cost drugs, as at SEWA, they not only provide an essential service at people's doorsteps, but also to develop health education and other programmes, and to make these organisations self reliant.
11. Health Insurance
As mentioned earlier, poor health and sickness is the number one stressor in the lives of the poor. One way of supporting them in times of health crisis is through developing a health insurance scheme, in a phased manner, as health insurance is not easy to plan and implement. First and foremost, people will not pay up any premium unless they are assured of good quality, timely and useful services. Then there is the question of working out the economic viability of the scheme and the actual mechanics of it : who will be eligible, where will the medical care be available and how, and of course, how will people obtain the actual benefits of health insurance. These are difficult issues but slowly we need to turn to these if our people are to be protected from health risk and the downward spiral towards poverty and indebtedness. Family planning services would naturally be an integral part of women's health services. However, as women's groups have often observed, there is a need for a more sensitive approach, and one that pays close attention to the quality of services and follow-up after acceptance of contraception and terminal methods. This includes including programmes for infertility too. Women must feel safe and be assured that their overall well-being is considered important.
12. Strengthening and sensitizing health providers at the local level
Both government health providers like Auxiliary Nurse Midwives (ANMs) ANMs and male multipurpose workers need strengthening and training to orient them to work with and for poor people, and according to their needs and priorities. ANMs, in particular those working in remote areas, need support of various kinds, including for their physical security. But their performance, indeed their and other health providers' very presence, needs strict monitoring by both the health system and local people, especially through the local village committees or panchayats.
13. Encouraging and supporting male involvement and responsibility
Much has been written on male involvement and male responsibility in population and health. However, there are still only a few concrete examples in India where men, hitherto on the margins of health and population programmes, have become actively involved. The time has certainly come to develop programmes which actively address men's concerns and needs, and also encourage and advocate for their greater role, not only in reproduction but also in parenting and child - care. There are enough indications that in many parts of the country, men are interested in being involved and learning about health and reproductive physiology. Our own experience with health education with men has been a very positive one. Men not only learn about health and family planning, but also are open to questioning stereotypes and age-old attitudes towards women. A group of urban and rural men have been organised will soon be registered as Gujarat state's first men's health cooperative.
Along with our examples of constructive health action, there have been some which didn't work. We have been trying for years to involve scientists, engineers and designers to help, us develop better and safer work tools and processes. We'd like our members productivity and earnings to increase, but not at the cost of their health. And we've witnessed safe machinery being introduced but at the cost of women's employment.
In Kheda district of Gujarat when the tobacco factory owners brought in safer machinery safeguarding women's health they were displaced. Where a hundred workers, all women, got work, this was reduced to ten, and mostly men. And there were no alternative work opportunities.
But the other issue is that we have found it hard to interest professionals and technical experts in designing simple equipment and tools at an affordable cost. This type of of product design and development requires slow and painstaking monitoring of workers health and few seem to take up this challenge.
Another area of concern is the tendency to take-up vertical programmes, namely one-point programmes centred around one disease. We have learned that this approach doesn't work because communities think of their health holistically. They do not find a one-disease approach useful. Yet, there is considerable pressure on voluntary organisations to take up these vertical programmes, usually well-funded and designed far away from the villages where their implementation is to occur.
A case in point is the Indian government's AIDS control programme which is having some difficulty getting off the ground. While there can be no two opinions about the need for AIDS control, the question is one of approach. AIDS control necessarily involves sensitive issues which require close community contact and a holistic approach to health. Fortunately, there is now increasing recognition of this at the policy level.
And finally, training, health education and diagnostic health camps or mobile clinics can only result in positive health outcomes if there is constant follow-up. There is a tendency to think that diagnostic health camps with curative services will show results. In fact, it is the slow and regular follow-up activities, including intensive house-to-house visits, which ultimately result in changes. This is true for health education as well. The impact of educational activities through follow-up visits and discussions is rarely given as much attention as is required.
These then are some of the approaches which worked or are workable, and some which haven't, in SEWA's experience. Above all we have learned that organising people around their needs for work and health security is the key. What this means is that local people, especially women, should be encouraged to come together and collectively work to improve their own health - through local health cooperatives barefoot doctors training schools and other such initiatives. Only then will we be able to make health for all a reality for all Indians.
Notes
1. Noponen, Helzi & Kantor, Paula, Crises, Setbacks and Chronic Problems: The Determinants of Economic Stress Events Among poor Households in India, (unpublished) SEWA
2. SEWA Health Baseline Survey, 1999 (unpublished).
3. Schuler Sidney and Pandit Harshida, Empowerment and Reproductive Decision-making among Self Employed Women in Ahmedabad, draft report SEWA, February, 1994. See also: Population Research Centre, Utkal University, Bhubaneshwar and International Institute for Population Sciences, Bombay, National Family Health Survey 1993 - Orissa Summary Report, March, 1995.
4. SEWA Health Baseline Survey, Op.cit.
5. Food First, Unpublished Study, SEWA, 1990.
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